Notes
Background
To design something that connects the large number of public
interested in NHS with the small number of Civil Service staff.
Discover – How you can get involved in discussion
Gather – When we want to say what needs to be discussed,
gather people together. Solutions, Recommendations – how things can be better.
Assembly – Meeting every 6 months – discussion with board
there amongst people to discuss the issues that have been discovered and
gathered.
Presenting technology, interacting with citizens and with
designers of the technology.
Discover
Bit of the whole system that connects people together.
Including finding the people that can assist the offline people. Discover is
the bit where NHS listens and learns.
Brings all the data together including from within NHS
Citizen and from outside. For personal data stores – person decides what data
to put on and who to give permission to access the data. Charities and
community groups can help to find staff, volunteers, and friends and family who
are online – to enable them to put their data and permissions online if they
want to.
Community map of people who are on NHS Citizen including how
to reach online connector people who can link to the offline people. This could
be whole community.
Can be presented as Data Stories – helping people to make
sense of data. If people discover a problem, many people may also notice that
problem. These can be flagged and gathered – Gather flag.
Data
Related data is data not created in the NHS Citizen system.
This is a shared resource inviting people to participate. It isn’t taking data
or surveillance. This is a way of getting data into the Discover system either
by direct participation or by searching the web for relevant information to
create data stories. Does so via machine learning, natural language processing,
and human involvement e.g. data journalists. This is to extract meaning and
stories e.g. from Twitter.
This is pulling data from the web and converting it to
meaningful information. I suggested pushing the data into the Discover system
via such things as Twitter posts with a specific hashtag, texts and emails with
a specific subject line. This could encourage people who don’t have computers
or want to do this on the fly whilst busy and mobile, or who don’t want to use
the Discover system (at least yet). People using these tools that are outside
Discover could receive messages from Discover to confirm their registration or information
is accepted and give information about where it has gone in Discover.
NHS Gather
MyDesk – Discussion spaces – Tools for debating and
prioritising ideas – To avoid flaming posts displayed as - Left side of window Support
idea – Right side Oppose idea. This is a crowdsourcing tool.
The system for these ideas needs to be simple and quick,
otherwise people don’t get involved.
Process is –
Exploration – Closing Statements – Move Forward – Locally or
Nationally
Could have Community Moderators
Assembly meeting will report back if ideas or problems are
being ignored by officials not being accountable. People will be able to search
so they know whether to raise a flag or if this has been flagged by others.
Assembly
This is a 6 monthly meeting where the most important
national ideas will be raised and discussed amongst people including the board.
The most important and popular ideas as discovered,
gathered, and voted on would go to the Assembly and/or other relevant bodies to
resolve them.
Discussion on what are the problems and solutions to ensure
inclusion. I raised problems of cuts to libraries, advocacy, support workers,
legal aid. Especially for people who don’t have the technology, excluded, poor,
and/or don’t know how to use the NHS Citizen technology they are unable to
express their views. Solutions I raised include Healthwatch, service user and
community groups to provide a ‘bridge’ (someone else mentioned that idea too) A
disability advocate raised issue of Equality Impact Assessment.
My Video interview – 2 minutes 19
Bristol Design Workshop- YouTube- was interviewed at this
event in Bristol 25th July- https://www.youtube.com/watch?v=lEvHyTnqrpw
