Sunday, July 27, 2014

Bristol Design Workshop - NHS Citizen Conference 24th and 25th July

Notes

Background

To design something that connects the large number of public interested in NHS with the small number of Civil Service staff.
Discover – How you can get involved in discussion
Gather – When we want to say what needs to be discussed, gather people together. Solutions, Recommendations – how things can be better.
Assembly – Meeting every 6 months – discussion with board there amongst people to discuss the issues that have been discovered and gathered.
Presenting technology, interacting with citizens and with designers of the technology.

Discover

Bit of the whole system that connects people together. Including finding the people that can assist the offline people. Discover is the bit where NHS listens and learns.
Brings all the data together including from within NHS Citizen and from outside. For personal data stores – person decides what data to put on and who to give permission to access the data. Charities and community groups can help to find staff, volunteers, and friends and family who are online – to enable them to put their data and permissions online if they want to.
Community map of people who are on NHS Citizen including how to reach online connector people who can link to the offline people. This could be whole community.
Can be presented as Data Stories – helping people to make sense of data. If people discover a problem, many people may also notice that problem. These can be flagged and gathered – Gather flag.

Data

Related data is data not created in the NHS Citizen system. This is a shared resource inviting people to participate. It isn’t taking data or surveillance. This is a way of getting data into the Discover system either by direct participation or by searching the web for relevant information to create data stories. Does so via machine learning, natural language processing, and human involvement e.g. data journalists. This is to extract meaning and stories e.g. from Twitter.
This is pulling data from the web and converting it to meaningful information. I suggested pushing the data into the Discover system via such things as Twitter posts with a specific hashtag, texts and emails with a specific subject line. This could encourage people who don’t have computers or want to do this on the fly whilst busy and mobile, or who don’t want to use the Discover system (at least yet).  People using these tools that are outside Discover could receive messages from Discover to confirm their registration or information is accepted and give information about where it has gone in Discover.

NHS Gather

MyDesk – Discussion spaces – Tools for debating and prioritising ideas – To avoid flaming posts displayed as - Left side of window Support idea – Right side Oppose idea. This is a crowdsourcing tool.
The system for these ideas needs to be simple and quick, otherwise people don’t get involved.
Process is –
Exploration – Closing Statements – Move Forward – Locally or Nationally
Could have Community Moderators
Assembly meeting will report back if ideas or problems are being ignored by officials not being accountable. People will be able to search so they know whether to raise a flag or if this has been flagged by others.

Assembly

This is a 6 monthly meeting where the most important national ideas will be raised and discussed amongst people including the board.
The most important and popular ideas as discovered, gathered, and voted on would go to the Assembly and/or other relevant bodies to resolve them.
Discussion on what are the problems and solutions to ensure inclusion. I raised problems of cuts to libraries, advocacy, support workers, legal aid. Especially for people who don’t have the technology, excluded, poor, and/or don’t know how to use the NHS Citizen technology they are unable to express their views. Solutions I raised include Healthwatch, service user and community groups to provide a ‘bridge’ (someone else mentioned that idea too) A disability advocate raised issue of Equality Impact Assessment.

My Video interview – 2 minutes 19

Bristol Design Workshop- YouTube- was interviewed at this event in Bristol 25th July- https://www.youtube.com/watch?v=lEvHyTnqrpw

Sunday, March 16, 2014

Stephen Wolfram Wants To Make Computer Language More - Popular Science

I'm going to look into this to see if it's relevant to my idea - New post on my Computing Research blog - MOCHA - Massive Online Collaborative Hierarchical Application - http://userdrivenmodelling.blogspot.co.uk/2014/03/mocha-massive-online-collaborative.html - Semantic Web

Stephen Wolfram Wants To Make Computer Language More Human - http://www.popsci.com/article/technology/stephen-wolfram-wants-make-computer-language-more-human - Article and Video 12 minutes - demonstration

"At South By Southwest, programmer and scientist Stephen Wolfram showed off more of his Wolfram Language software."

"Last month, Stephen Wolfram--scientist, founder of Wolfram Research, and the closest thing Big Data has to a rock star--unveiled Wolfram Language, a "symbolic" computer language more than 25 years in the making."

There is a 12 minute video presentation I will watch. This looks like the kind of highly structured search but human language based search that could link with highly structured but human language based code I am working on, in order to provide a collaborative application of related nodes/objects.

Wednesday, March 12, 2014

MOCHA - Massive Online Collaborative Hierarchical Application

My new idea based on my PhD research - MOCHA - Massive Online Collaborative Hierarchical Application

I literally dreamt up this idea this morning, writing it down a scrap of paper when I woke. This idea is based on my PhD (links to that below). The idea is for a Semantic Web Hierarchical Programme - run by a search algorithm, which is expanded to provide the services of an interpreter/compiler.

This is a particularly appropriate subject on the 25th anniversary of the World Wide Web -

BBC Video-Sir Tim Berners-Lee: Web needs its own Magna Carta - http://www.bbc.co.uk/news/world-26536354 - Sir Tim Berners-Lee on world wide web at 25

BBC- Sir Tim Berners-Lee: World wide web needs bill of rights - http://www.bbc.co.uk/news/uk-26540635  - Berners-Lee seeks web 'Magna Carta' - Video & Article

What I want to research is how to provide structured Semantic Web code information to a web search algorithm. The code would be in a combination of English language and mathematical equations, the same way as I used for my PhD research. The hierarchical aspect of this is that from the root node/page, every other page would have a position in a tree. Each node would contain the following information -


  • A name of the page
  • List of Sub pages if any
  • Equations/Code if any
  • Values if any
This would be scalable to very large trees.

As a simple example we could have page
  • Name - 'Energy'
  • Sub pages - 'Mass' 'Light Speed'
  • Equations - 'Energy = Mass * (Light Speed) Squared
  • Values - Null

Sub pages
  • Name - Mass
  • Sub pages - Null
  • Equations - Null
  • Value - 3 (Kg)

  • Name - Light Speed
  • Sub pages - Null
  • Equations - Null
  • Value - 300,000 (Km/h)

Of course the algorithm would need to deal with units in the long run, but leaving that aside, the algorithm just needs to follow a logical path through each page, and each page points to the next page.

At the end of a branch the algorithm needs to return to the root of the branch and move to the next branch (if any). That algorithm would work for any sized tree (hence would work for massive trees, as was the case for my PhD - 2012).

What would then be possible is to enable a search engine such as that which ranks pages to instead perform this search and calculation. As an example a calculation could be performed and continuously collaboratively refined on the predicted cost of a complex engineering project. Each participant would enter their own data on a page or branch. Whenever their figures or equations change, this would cascade into the overall predicted cost.

I'm going to work on expanding this post and providing updates in this blog until I have enough information to turn this into a paper and/or presentation.

Below are the main links to my previous research that this idea is based on - 

My PhD thesis on University Repository at http://eprints.uwe.ac.uk/17918/ - User driven modelling: Visualisation & systematic interaction for end-user.

Journal paper JVLC subscription required -  http://www.sciencedirect.com/science/article/pii/S1045926X12000572 - 'User-Driven Modelling: Visualisation & Systematic Interaction for end-user programming'.

Journal paper JVLC open access - http://eprints.uwe.ac.uk/17817/ - 'User-Driven Modelling: Visualisation & Systematic Interaction for end-user programming'.

Wednesday, August 28, 2013

Government Digital By Default - Reality Check

Digital exclusion by default

Here is evidence why digital by default will leave people (many of them vulnerable) more vulnerable and excluded.

Lack of Skills amongst public

Digital Intelligence: 16m Brits ‘lack basic web skills’ - http://www.digitalstrategyconsulting.com/intelligence/2012/11/16m_brits_lack_basic_web_skils.php - Report by UK digital champion Martha Lane Fox.

Lack of Access Exclusion and Vulnerability

@BBCMarkEaston - 53% of 7.1m UK adults who've NEVER used Internet are disabled, says ONS. Universal Credit will be 'digital by default'. - Seven million Brits 'never used net' - http://www.bbc.co.uk/news/technology-22538136 - More than seven million adults in the UK have never been online, official figures say, with the elderly remaining the least connected. Disabled people are three times less likely to get online than people without disability.

Digital by Default harms people.

Lack of Service User Involvement

Public service Mantra - No Decision About Me Without Me! - Where is the progress by DWP (Department of Work and Pensions) and ATOS in provision of fair assessments, IT Systems, Universal Credit and Tax Systems that effect them? Enough Service User Involvement, inclusion of full range of minorities? people with disabilities? 

BBC News - Hospital inspections- This is needed for ATOS/DWP - http://www.bbc.co.uk/news/health-23348824 - Recruit "small army" of doctors, nurses, patients and carers.

Mental health patients contract run by security firm G4S - http://www.thisisgloucestershire.co.uk/Mental-health-patients-contract-run-security-firm/story-19604354-detail/story.html - Any Service User Involvement in this Decision?

Why people like me agree the WCA is unfair - http://www.rethink.org/news-views/2013/05/why-people-like-me-agree-the-wca-is-unfair - people like me and my son have known how unfair the WCA is for months.

Full statement from special rapporteur on housing Raquel Rolnik - http://gu.com/p/3tkck/tw - via @guardian - 'Bedroom Tax'

Government claims Welfare Reforms are working - So why won't they undertake Cumulative Impact Assessment - http://epetitions.direct.gov.uk/petitions/43154 - #WOWPetition

Systematic failures and Institutional Discrimination

BBC News - Brain injury victim's family disgusted at 'work' letter - http://www.bbc.co.uk/news/uk-northern-ireland-foyle-west-23839671 - man permanent vegetative state after assault.

One-legged man accused of benefit fraud after officials examined wrong leg - http://www.westernmorningnews.co.uk/legged-man-accused-benefit-fraud-officials/story-19682497-detail/story.html - One leg improved the other amputated - guess which leg DWP and CPS checked?

Charities criticise 'flawed' fit for work system | Nursing in Practice - http://www.nursinginpractice.com/article/charities-criticise-flawed-fit-work-system - Half of people with a progressive disease such as multiple sclerosis have been told they will recover enough to work by the Work Capability Assessment.

Atos fit-to-work assessments branded 'farcical' people with progressive diseases like Parkinson's told they'll RECOVER - http://www.mirror.co.uk/news/uk-news/atos-fit-to-work-assessments-branded-farcical-2225751

Paul McCauley, left in vegetative state by gang attack, sent letter asking whether he is fit for work |  http://metro.co.uk/2013/08/27/man-in-vegetative-state-sent-letter-asking-if-he-is-fit-for-work-3939173/ via @MetroUK

£130 to get medical evidence for WCA? - Rethink Mental Illness, the mental health charity: - http://www.rethink.org/news-views/2013/08/130-to-get-medical-evidence-for-wca - Mental Health News.

Secret Cuts 6: How are those with mental health problems treated by Atos? http://www.newstatesman.com/alan-white/2013/08/secret-cuts-6-how-are-those-mental-health-problems-treated-atos - Complaints about work capability assessment.

Whistleblower tells the inside story of Atos - http://www.mirror.co.uk/news/uk-news/whistleblower-tells-inside-story-atos-2194951 - via @DailyMirror - Mark Thomas - and - I’ve had a fistful of IDS.

Written off by Atos - I might as well die: The desperate letters from benefit cuts victims - http://www.mirror.co.uk/news/uk-news/written-atos---might-well-2231300 - via @DailyMirror - Horror stories from readers.

BBC News - Basic rights of mentally ill 'violated' - http://www.bbc.co.uk/news/health-23685670 - because of a shortage of beds in psychiatric units, MPs say.

Mentally ill patients sectioned unnecessarily just to gain access to a hospital bed - http://www.independent.co.uk/news/uk/politics/mentally-ill-patients-sectioned-unnecessarily-as-only-way-to-a-hospital-bed-8760166.html - Chair of Health Select Committee.

Proof that ATOS expect people with incurable conditions like cerebral palsy to "get better" - http://tompride.wordpress.com/2013/09/11/proof-that-atos-expect-people-with-incurable-conditions-like-cerebral-palsy-to-get-better/  via @ThomasPride

Today 11th September Jim Paterson https://twitter.com/gjpaterson/ put forward the  idea that ATOS tests people more often than necessary, including for incurable medical conditions that will not improve or will get worse. The incentive he mentioned is that they are paid per assessment. I think he has a point that this incentive skews their work.

To put it mildly many people with disabilities are not feeling empowered by the system, nor by its direction of change!

Top-Down design causing the usual failures

Many links tweeted by https://twitter.com/SysThinkReview

“I know why Universal Credit IT is failing” John Seddon message for @margarethodge - http://www.universalcredit.co.uk/category/i-know-why-universal-credit-it-is-failing-john-seddon-message-for-margaret-hodge/  #tVM - This analysis is absolutely right and goes straight to the core issue.

How to fix Universal Credit- cut out the IT crowd via @Telegraph - http://blogs.telegraph.co.uk/news/philipjohnston/100234425/how-to-fix-universal-credit-cut-out-the-it-crowd/ - Work and Pensions Secretary has blamed his department’s officials for the initial teething problems. - "Since people have so many different experiences and circumstances constructing an IT system that will embrace them all is doomed to failure. So why not have the single UC, which is the good bit, and recognise that it is best implemented by people, not computers? As John Seddon, the systems guru, has argued in a bid to get the public sector to listen 'computers are terrible at absorbing variety – and taxation, credits and benefits are problems with wide variety.'

Seddon sees UC as another Whitehall plan obsessed with cost that will actually be more expensive when it all goes wrong than giving claimants someone to talk to who will deal with their problems straight away. Online services that are too complex merely take longer, frustrate claimants and add more cost. Seddon says these would be far better delivered face-to-face by benefit offices and the savings that IT makes in staff costs are illusory.

'Citizen-centred services have been able to cut their operating costs and cope with rising demand,' says Seddon . 'They demonstrate that good service is, actually, cheaper. The people who have developed these outstanding services could deliver the universal credit in months, without a massive investment in IT.'

Will anyone listen to this good advice and stop seeing digital as the only way to do business in government?"

"One of the revelations in the NAO report is that the so-called reset team has proposed that this should be abandoned: instead of digital by default, the UC programme should be 'digital as appropriate'."

Iain Duncan Smith put his faith in new leadership of Universal credit. This is not how big IT projects succeed. They succeed when users are staff are the main drivers, fully involved and engaged.

The Government plan to deliver Universal Credit on time and on budget, simply by increasing the budget and putting back the date. It will still fail.

Bob Marshall ‏@flowchainsensei1 -
"In command-and-control organisations, the ILLUSION of control is much more comforting - and hence valuable - than any actual control."

Universal credit:guaranteed to fail? http://gu.com/p/324mt/tw - via @guardian will not be able to deal with human variety-try service by humans? - Experts predicted failure from start 2011!

BBC News - Universal credit: What went wrong? http://www.bbc.co.uk/news/uk-politics-23971068 - At-a-glance: What went wrong.

"Of £303m spent so far on IT, only £162m deemed to be fit to be capitalised as an asset.  " DWP writes off millions of pounds on Universal Credit IT, damning NAO report reveals. http://www.computerweekly.com/news/2240204715/DWP-writes-off-millions-of-pounds-on-Universal-Credit-IT-damning-NAO-report-reveals @ComputerWeekly

“@SysThinkReview: NAO: 'Universal Credit: early progress.' http://www.nao.org.uk/wp-content/uploads/2014/09/Executive-Summary.pdf ” > points 23 and 24, carry on regardless...

David Cameron's £2.4bn universal credit project riddled with problems -  @guardian £34m wasted on failed IT programmes http://www.theguardian.com/politics/2013/sep/05/david-cameron-24bn-universal-credit-problems


Universal credit: Iain Duncan Smith blames civil servants for IT failings - http://www.theguardian.com/politics/2013/sep/05/universal-credit-iain-duncan-smith - rare step of publicly blaming civil servants.

DWP drops agile from flagship government software project- Public Sector IT: http://www.computerweekly.com/blogs/public-sector/2013/05/dwp-drops-agile-from-flagship.html - drops scheme to avert software disasters.

- and did DWP ever embrace the agile approach anyway, feedback is no!

Universal Credit? Universal DISCREDIT, more like, say insiders - http://www.theregister.co.uk/2013/07/10/universal_credit_will_be_a_universal_failure_says_whistleblower/ - Government sources -' reveal - total disarray'

BBC News - Universal credit: National roll-out delayed, claims Labour - http://www.bbc.co.uk/news/uk-politics-23262496 - hit by fresh delays.

BBC News - DWP 'chaos' to cost £1.4bn, says Labour's Liam Byrne - http://www.bbc.co.uk/news/uk-politics-23768436 - Iain Duncan Smith has lost control of spending.

Prepare to add HS2 & Universal Credit to depressing list of fiascos @Telegraph - http://www.telegraph.co.uk/news/politics/10252450/Prepare-to-add-HS2-and-Universal-Credit-to-our-depressing-list-of-fiascos.html - Policies ministers stubbornly stuck to.

IDS accuses civil servants of ignoring warnings about Universal Credit -
http://www.dailymail.co.uk/news/article-2411897/Universal-Credit-Iain-Duncan-Smith-accuses-civil-servants-ignoring-warning-signs.html -  Blame game begins over benefits.

What were Iain Duncan Smith's 'welfare reforms' really about? Sue Marsh - http://www.theguardian.com/commentisfree/2013/sep/05/what-were-welfare-reforms-about - failed & frightened most vulnerable.

Universal Credit crunch: Iain Duncan Smith’s welfare reform wastes £34m- so far http://www.independent.co.uk/news/uk/politics/universal-credit-crunch-iain-duncan-smiths-welfare-reform-wastes-34m--so-far-8798957.html - ‘weak management & poor governance’


£200m of Universal Credit IT could be scrapped, MPs told -  http://www.computerweekly.com/news/2240205242/200m-of-Universal-Credit-IT-could-be-scrapped-MPs-told - Computer Weekly.

Even if Tax and Benefit systems each work well (doubtful), they then need to work together in real time!


Lack of Progress in Developing Open Semantic Web Technologies

BBC News - Tim Berners-Lee: Net neutrality 'regulation needed' - http://www.bbc.co.uk/news/technology-23205244 - Click - Video and Article.

Has the web developed how Berners - Lee hoped it would? - http://www.bbc.co.uk/news/technology-22786821 - BBC News - Click Video - Tim Berners-Lee's invention has gone global.

But Government does not involve people in development of its' IT and Web systems.

Failures

If these failures are not addressed these digital by default and other schemes will fail individually and together. Implementers will be unable to do anything other than salvage the best bits from the wreckage.

Monday, August 26, 2013

New blog and continuing this blog

I've started a blog on Mental Health & Service User Representation.1st post-talk I gave on exercise & mental health - http://peterhaleserviceuser.blogspot.co.uk/

I'll still be carrying on with this blog also. My interest in research and in computing continues, as much as ever.

I'm currently learning C# .net.

Friday, July 12, 2013

FOI Disability Aseessments cost DWP £199.1m 2012-13

2nd July 2013
Dear Dr Hale,
Freedom of Information Act – Request for Information
Our Reference: FOI 2784
Thank you for your Freedom of Information request received on 18th June 2013. You asked:
1. Total DWP direct cost for all assessments re: eligibility for Employment Support
Allowance in the UK since the election of the new Government in May 2010 for the period
up to which the statistics have been compiled, e.g. payments to medical provider such as
ATOS.
2. Total DWP indirect cost for all assessments re: eligibility for Employment Support
Allowance in the UK since the election of the new Government in May 2010 for the period
up to which the statistics have been compiled. Administration costs relating to assessments,
such as related DWP costs of communication with ATOS and claimant, and processing
assessments, outcomes and benefit changes where applicable.
3. Total DWP direct cost for all appeals re: eligibility for Employment Support Allowance in
the UK since the election of the new Government in May 2010 for the period up to which the
statistics have been compiled, e.g. payments for tribunals and/or for DWP representation at
tribunals.
4. Total DWP indirect cost for all appeals re: eligibility for Employment Support Allowance in
the UK since the election of the new Government in May 2010 for the period up to which the
statistics have been compiled. Administration costs relating to appeals, such as related
DWP costs of communication with tribunal and claimant, and processing assessments,
outcomes and benefit changes where applicable.
Data is not available prior to 2011/12.
1. The direct cost for all assessments for eligibility for Employment Support Allowance in
the UK was:
DWP Finance and Commercial
Our address Ground Floor
Quarry House
Quarry Hill
Leeds
LS2 7UA
• Approximately £62.1m in 2011/12
• Approximately £77.1m in 2012/13.
With regards your question about payments to medical provider such as Atos:
The Department for Work and Pensions re-awarded Atos Origin IT Services Ltd, trading
as Atos Healthcare, a new Contract to provide Medical Services on behalf of the
Department from 1 September 2005. The total cost of these services amounts to
approximately £100 million per annum. This figure not only covers the total number of
assessments undertaken across all benefits, but also costs relating to written and verbal
medical advice, fixed overheads, administrative costs, investment in new technology
and other service improvements.
I can further confirm that there is not a fixed minimum fee for the provision of
assessments. As the number of assessments required by the Department increases or
decreases then the payment made to Atos Healthcare for these varies accordingly.
2. The indirect cost for all assessments for eligibility for Employment Support Allowance in
the UK was:
• Approximately £40.1m in 2011/12
• Approximately £102.4m in 2012/13.
3. The direct cost for all appeals is not available to DWP. DWP are responsible for the
preparation of appeal submissions with Her Majesty’s Courts and Tribunal Services
(HMCTS) responsible for the scheduling and hearing of appeals. You may find further
information on tribunal appeals on the following website;
https://www.gov.uk/government/publications/court-statistics-quarterly--2
4. The indirect cost for all appeals re: eligibility for Employment Support Allowance in the
UK was:
• Approximately £16.5m in 2011/12
• Approximately £19.6m in 2012/13.
The data provided is staff and non staff costs from the DWP Operations Activity Based
Models 11/12 and 12/13.
If you have any queries about this letter please contact us quoting the reference number
above.
Yours sincerely
Communications Team
Finance and Commercial
E mail: quarryhouse.oppmpq-foi@dwp.gsi.gov.uk
----------------------------------------------------------------------------------------------
Your right to complain under the Freedom of Information Act
If you are not happy with this response you may request an internal review by e-mailing freedom-ofinformation-
request@dwp.gsi.gov.uk or by writing to DWP, Central FoI Team, Caxton House, 6-12 Tothill
Street, London. SW1H 9NA. Any review request should be submitted within two months of the date of this
letter.
If you are not content with the outcome of the internal review you may apply directly to the Information
Commissioner’s Office for a decision. Generally the Commissioner cannot make a decision unless you have
exhausted our own complaints procedure. The Information Commissioner can be contacted at: The
Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow Cheshire SK9 5AF
www.ico.gov.uk

Wednesday, June 26, 2013

Networks for Healing-Mental Health Peer Support Computing

Networks for Healing-Mental Health Peer Support Computing

This article recommends Web-based networks for healing by enabling sharing of help and support. This would be a simple forum system for social networking, protective and friendly. Service users would be involved in the design of this peer support system. The problem is that a digital society causes social exclusion of service users. This can then worsen their symptoms.

The idea is inspired by activities and research focussing on exercise and team sports, Bristol Active Life Project (BALP), Walking for Health/Rethink. This could be applied to peer support networks.

To ensure involvement of service users an intermediate step is needed towards digital inclusion of mental health sufferers by provision of a peer support network for sharing help and advice. This is necessary because there are advantages and disadvantages for more open peer networking systems.

Advantages of Twitter/Facebook


  • Facebook helps depression: Looking at old photos can help treat mental health problems.
  • New research discovers emergence of Twitter groupings of people with shared interests.

Disadvantages of Twitter/Facebook


  • Trolling
  • Arguments
  • Irrelevance
  • Overcomplicated to use.
  • Advertising - can exploit vulnerable people.
  • Lack of confidentiality causing fear of participation.

Peer Support Network

The peer support forum network would be designed to be private to its members, and would be simple and accessible. This is important for those with different needs and illnesses.
The privacy of forums and caution in rate of growth would deal with dangers from disadvantages of directly applying Twitter and Facebook. Digital inclusion of mental health patients can thus be encouraged within a safe environment. Assurance is needed that people posting on the site are considerate and careful, if someone wants help with a mental health issue, the responder must be constructive. If someone’s post is not appropriate this needs to be moderated carefully via a person/people and technology in a diplomatic and sympathetic way. Because as well as preventing the post from reaching anyone it could harm, it’s essential to avoid discouragement and harm to the person posting. A mental health condition may cause difficulties in judging what is or is not appropriate.
The above is essential work as benefits and many other aspects of everyday life are becoming more dependent on online participation.